Mucopolysaccharidosis (MPS) Group
The Mucopolysaccharidosis (MPS) Group is a subgroup of Siblings with a Mission and provides information about Mucopolysaccharidosis (MPS). The MPS Group serves siblings of individuals of all 7 MPS Disorders:
a) MPS I Hurler Syndrome, Hurler-Scheie Syndrome, Scheie Syndrome
b) MSP II Hunter Syndrome
c) MPS III Sanfilippo Syndrome A, B, C, and D
d) MPS IV Morquio Syndrome A, B
e) MPS VI Maroteaux-Lamy Syndrome
f) MPS VII Sly Syndrome
h) MPS IX Hyaluronidase Deficiency (Natowicz Syndrome)
The MPS Group also serves siblings of individuals diagnosed with Mucolipidosis (ML)
The MPS Group provides information about the types and symptoms of MPS. In addition to hosting monthly video conferences, the MPS Group will also offer support, provide stories, and host sibling workshops.
To learn more about Mucopolysaccharidosis (MPS), click here.
For more information about MPS, view the following pages:
Education and Awareness
Story Column
Video Conferences
Some examples of associations that assist individuals diagnosed with Mucopolysaccharidosis (MPS) are:
MPS:
National MPS Society (USA)
UK MPS Society
Canadian MPS Society
MPS Society France
The Irish MPS Society
Picture copied from: www.mpssociety.org
Siblings with a Mission is an international organization established to serve and support siblings of individuals with special needs. All images are found on Google images and are solely used for education purposes. The stories and advice provided by Siblings with a Mission are not to be replaced by professional advice and counseling but to be considered as an additional source of support.
The Mucopolysaccharidosis (MPS) Group is a subgroup of Siblings with a Mission and provides information about Mucopolysaccharidosis (MPS). The MPS Group serves siblings of individuals of all 7 MPS Disorders:
a) MPS I Hurler Syndrome, Hurler-Scheie Syndrome, Scheie Syndrome
b) MSP II Hunter Syndrome
c) MPS III Sanfilippo Syndrome A, B, C, and D
d) MPS IV Morquio Syndrome A, B
e) MPS VI Maroteaux-Lamy Syndrome
f) MPS VII Sly Syndrome
h) MPS IX Hyaluronidase Deficiency (Natowicz Syndrome)
The MPS Group also serves siblings of individuals diagnosed with Mucolipidosis (ML)
The MPS Group provides information about the types and symptoms of MPS. In addition to hosting monthly video conferences, the MPS Group will also offer support, provide stories, and host sibling workshops.
To learn more about Mucopolysaccharidosis (MPS), click here.
For more information about MPS, view the following pages:
Education and Awareness
Story Column
Video Conferences
Some examples of associations that assist individuals diagnosed with Mucopolysaccharidosis (MPS) are:
MPS:
National MPS Society (USA)
UK MPS Society
Canadian MPS Society
MPS Society France
The Irish MPS Society
Picture copied from: www.mpssociety.org
Siblings with a Mission is an international organization established to serve and support siblings of individuals with special needs. All images are found on Google images and are solely used for education purposes. The stories and advice provided by Siblings with a Mission are not to be replaced by professional advice and counseling but to be considered as an additional source of support.
