Education and Awareness: Mucopolysaccharidosis (MPS)
Siblings with a Mission spreads awareness of Mucopolysaccharidosis (MPS) to communities around the world. Through articles posted on our website, we provide information about MPS as well as current research. We also connect members to facilities and associations that assist individuals diagnosed with MPS.
To learn about the symptoms and causes of MPS, click here.
Siblings with a Mission spreads awareness of Mucopolysaccharidosis (MPS) to communities around the world. Through articles posted on our website, we provide information about MPS as well as current research. We also connect members to facilities and associations that assist individuals diagnosed with MPS.
To learn about the symptoms and causes of MPS, click here.
Articles about Mucopolysaccharidosis (MPS):
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"That's So Retarded" by Louise van den Bergh
Why do people use the word "retarded"? Is the word accurate? How do you feel when people say the word "retarded?" Our International Down Syndrome Chairman discusses the debate around the word "retarded" and why people should NOT use it. Click here to read the article. Take the R-Word Pledge "Spread the Word to End the Word." Take the pledge to eliminate the R-word here. "The Orphans of Medical Research: Finding a Cure for Rare Diseases," by Rachel Dokko Did you know very few doctors and scientists research rare diseases? Learn why here. MPS Sibling: Haley Miller Haley Miller's brother, Dan, has MPS II Hunter syndrome. As Haley explains "Having a brother or sister with special needs has absolutely changed my outlook on others." Haley makes it her goal to spread awareness of MPS and teach other MPS siblings that they are not alone. Read Haley's story here. Nathan Grant publishes "The MPS Sibling" Do you have a brother or sister diagnosed with Mucopolysaccharidosis (MPS) or a related disorder? Do you ever feel angry, sad, jealous, disappointed, or guilty? Do you get upset when people stare at your brother or sister? If so, read "The MPS Sibling: Short Stories for Brothers and Sisters." In his book, Nathan shares his story about living with a twin brother diagnosed with MPS. In addition to explaining what MPS is, "The MPS Sibling" also includes 28 stories from MPS siblings and families around the world. Read more about the book here. "Running for a Cure," by Chelsey Klenke Our Vice-President Chelsey Klenke is participating in a 5K run to raise money and spread awareness for MPS. Please read and support Chelsey's story here. "A SuperHero Story" By Avram Joseph What is it like to learn that your child is diagnosed with a rare terminal disease? What do you do to move forward, to help your child? In his story, Avram explains what it was like to find out that his son Kalel has Mucopolysaccharidosis (MPS) II Hunter syndrome. Determined to find help for his son and others, Avram and his wife created the nonprofit organization MPS SuperHero Foundation, Inc. As Avram explains, "Most people won't ever meet their hero, but me, I'm raising mine." Read Avram's inspiring story here. |
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Resources for People with MPS and their Families
National MPS Society (USA), website: www.mpssociety.org
UK MPS Society, website: www.mpssociety.org.uk
Canadian MPS Society, website: www.mpssociety.ca
The Irish MPS Society, website: www.mpssociety.ie/wordpress
For a more comprehensive list of resources, see the MPS Society's website: www.mpssociety.org/support/links
For more information about resources, feel free ask questions during our events or contact us here.
Siblings with a Mission is an international organization established to serve and support siblings of individuals with special needs. All images are found on Google images and are solely used for education purposes. The stories and advice provided by Siblings with a Mission are not to be replaced by professional advice and counseling but to be considered as an additional source of support.
National MPS Society (USA), website: www.mpssociety.org
UK MPS Society, website: www.mpssociety.org.uk
Canadian MPS Society, website: www.mpssociety.ca
The Irish MPS Society, website: www.mpssociety.ie/wordpress
For a more comprehensive list of resources, see the MPS Society's website: www.mpssociety.org/support/links
For more information about resources, feel free ask questions during our events or contact us here.
Siblings with a Mission is an international organization established to serve and support siblings of individuals with special needs. All images are found on Google images and are solely used for education purposes. The stories and advice provided by Siblings with a Mission are not to be replaced by professional advice and counseling but to be considered as an additional source of support.
