Siblings with a Mission
International Society for Support and Awareness
  • Home
  • About Us
    • Our Mission
    • Leadership Team
    • Members and Countries
    • Partners
  • Sibling Support Groups
    • Autism Spectrum Disorder >
      • About Autism Spectrum
      • Education and Awareness
      • Story Column
      • Video Conference
      • Sibling Workshop
    • Down Syndrome >
      • About Down Syndrome
      • Education and Awareness
      • Story Column
      • Video Conference
      • Sibling Workshop
    • Mucopolysaccharidosis (MPS) >
      • About MPS
      • Education and Awareness
      • Story Column
      • Video Conference
      • Sibling Workshop
    • Cerebral Palsy >
      • About Cerebral Palsy
      • Education and Awareness
      • Story Column
      • Video Conference
      • Sibling Workshop
    • Bipolar Disorder >
      • About Bipolar Disorder
      • Education and Awareness
      • Story Column
      • Video Conference
      • Sibling Workshop
    • ADD/ADHD >
      • About ADD/ADHD
      • Education and Awareness
      • Story Column
      • Video Conference
      • Sibling Workshop
    • Sibling Grief Support >
      • Story Column
      • Video Conference
      • Sibling Workshop
  • SibSpot
    • Special Messages >
      • A Message for Brothers and Sisters
      • A Message for Parents, Grandparents, and Sibling Supporters
      • A Message for the Community
    • Story Columns
    • History of Science 170 Blog
    • Sibling Symposiums
    • Sibling Spotlight
    • The Inspire Project
    • Connections
    • Resource Center
    • About Sibling Workshops >
      • What are Sibling Workshops?
      • Upcoming Workshops
      • Start a Sibling Workshop
  • News
    • Upcoming Events
    • Photo Gallery
    • Documents
    • Current Research
  • Video
    • About Video Conferences
    • Join Video Conferences
    • View Videos
  • Join Us
    • Become a Member
    • Start a Support Group
    • Apply to be a Support Group Leader
  • Contact Us
  • I Am Grateful For What My Brother Has Taught Me
  • Columbia University Research
  • National Siblings Day 2021
Education and Awareness: Mucopolysaccharidosis (MPS)

Siblings with a Mission
spreads awareness of Mucopolysaccharidosis (MPS) to communities around the world. Through articles posted on our website, we provide information about MPS as well as current research. We also connect members to facilities and associations that assist individuals diagnosed with MPS.

To learn about the symptoms and causes of MPS, click here.

Articles about Mucopolysaccharidosis (MPS):
"That's So Retarded" by Louise van den Bergh
    Why do people use the word "retarded"? Is the word accurate? How do you feel when people say the word "retarded?" Our International Down Syndrome Chairman discusses the debate around the word "retarded" and why people should NOT use it. Click here to read the article.

Take the R-Word Pledge
     "Spread the Word to End the Word." Take the pledge to eliminate the R-word here.


"The Orphans of Medical Research: Finding a Cure for Rare Diseases," by Rachel Dokko
    Did you know very few doctors and scientists research rare diseases? Learn why here.




MPS Sibling: Haley Miller
    Haley Miller's brother, Dan, has MPS II Hunter syndrome. As Haley explains "Having a brother or sister with special needs has absolutely changed my outlook on others." Haley makes it her goal to spread awareness of MPS and teach other MPS siblings that they are not alone. Read Haley's story here.







Nathan Grant publishes "The MPS Sibling"
      Do you have a brother or sister diagnosed with Mucopolysaccharidosis (MPS) or a related disorder? Do you ever feel angry, sad, jealous, disappointed, or guilty? Do you get upset when people stare at your brother or sister? If so, read "The MPS Sibling: Short Stories for Brothers and Sisters." In his book, Nathan shares his story about living with a twin brother diagnosed with MPS. In addition to explaining what MPS is, "The MPS Sibling" also includes 28 stories from MPS siblings and families around the world. Read more about the book here.



"Running for a Cure," by Chelsey Klenke
     Our Vice-President Chelsey Klenke is participating in a 5K run to raise money and spread awareness for MPS. Please read and support Chelsey's story here.









"A SuperHero Story"
By Avram Joseph
     What is it like to learn that your child is diagnosed with a rare terminal disease? What do you do to move forward, to help your child? In his story, Avram explains what it was like to find out that his son Kalel has Mucopolysaccharidosis (MPS) II Hunter syndrome. Determined to find help for his son and others, Avram and his wife created the nonprofit organization MPS SuperHero Foundation, Inc. As Avram explains, "Most people won't ever meet their hero, but me, I'm raising mine." Read Avram's inspiring story here.
Picture
Picture
Picture
Picture


Picture




Picture

Resources for People with MPS and their Families

            National MPS Society (USA), website: www.mpssociety.org

            UK MPS Society, website:
www.mpssociety.org.uk

            Canadian MPS Society, website: www.mpssociety.ca

            The Irish MPS Society, website: www.mpssociety.ie/wordpress


For a more comprehensive list of resources, see the MPS Society's website: www.mpssociety.org/support/links

For more information about resources, feel free ask questions during our events or contact us here.

Siblings with a Mission is an international organization established to serve and support siblings of individuals with special needs. All images are found on Google images and are solely used for education purposes. The stories and advice provided by Siblings with a Mission are not to be replaced by professional advice and counseling but to be considered as an additional source of support.
Powered by Create your own unique website with customizable templates.